Family Advocacy Day 2009


Nobody can tell the stories of children’s hospitals better than young patients and their families.

On June 17 and 18, 2009, patients and families from children’s hospitals across the country will travel to Washington, DC, to advocate on behalf of their hospitals as part of the fifth annual N.A.C.H. Family Advocacy Day. Follow the journeys of these champions who will share their stories to illustrate why all children need children's hospitals.


Meet Our Champion of the Week

Each week leading up to Family Advocacy Day, Children's Hospital Association will profile an All-Star of the week.

Isabelle "Simone" S., Mt. Washington Pediatric Hospital

2012 FAD All-StarSimone just turned 3 years old and has already had quite a few challenges. She spent her first 13 months in the hospital, and has had several more visits this year due to various illnesses and for surgeries due to craniosynostosis, a skull deformity; tracheomalasia, a floppy airway; and cystic fibrosis, a chronic lung disease.

Read more and cheer Isabelle "Simone" on!

Program Highlights

There’s a lot of serious business to be done while families and hospitals are in Washington, however, there’s also time for fun and networking.

The event will kick off with a sightseeing tour of the city, followed by lunch at the hotel and an interactive, family-friendly briefing to prepare participants for their legislative visits the following day. Later that evening, the hotel ballroom will be transformed for a patriotic celebration, including ice cream and toy shops, face painters and caricaturists, and a performance by a live band for the kids.

On June 18, hospitals and families will head to Capitol Hill to meet with legislators and their staff and will enjoy lunch in one of the Senate office buildings.

Highlights from Family Advocacy Day 2008
Click photo to access album

Information for Hospitals and Families

Information for the Media

 

 Melissa Ellmer blog promo
Nicklas Nelson blog promo

 

“Bringing one of our families to Washington for Family Advocacy Day has been very beneficial – not only to educate our legislators on the importance of Medicaid and children's hospitals to the health of our children – but also as a way for our families to give back to the hospital and become an active advocate.”

--Christopher G. Dawes
President and CEO
Lucile Packard Children’s Hospital at Stanford
Palo Alto, CA