Nobody can tell the stories of children’s hospitals better
than young patients and their families.
On June 17 and 18, 2009, patients and families from
children’s hospitals across the country will travel to Washington,
DC, to advocate on behalf of their hospitals as part of the fifth annual
N.A.C.H. Family Advocacy Day. Follow the journeys of these champions who
will share their stories to illustrate why all children need children's
|Meet Our Champion of the Week
Each week leading up to Family Advocacy Day, Children's Hospital
Association will profile an All-Star of the week.
Isabelle "Simone" S., Mt. Washington Pediatric Hospital
Simone just turned 3 years old and has already
had quite a few challenges. She spent her first 13 months in the
hospital, and has had several more visits this year due to various
illnesses and for surgeries due to craniosynostosis, a skull deformity;
tracheomalasia, a floppy airway; and cystic fibrosis, a chronic lung
Read more and cheer Isabelle "Simone" on!
There’s a lot of serious business to be done while families and
hospitals are in Washington, however, there’s also time for fun
The event will kick off with a sightseeing tour of the city, followed
by lunch at the hotel and an interactive, family-friendly briefing to
prepare participants for their legislative visits the following day.
Later that evening, the hotel ballroom will be transformed for a
patriotic celebration, including ice cream and toy shops, face painters
and caricaturists, and a performance by a live band for the kids.
On June 18, hospitals and families will head to Capitol Hill to meet
with legislators and their staff and will enjoy lunch in one of the
Senate office buildings.
Information for Hospitals
Information for the Media
“Bringing one of our families to Washington for Family Advocacy
Day has been very beneficial – not only to educate our legislators
on the importance of Medicaid and children's hospitals to the health of
our children – but also as a way for our families to give
back to the hospital and become an active advocate.”
--Christopher G. Dawes
President and CEO
Lucile Packard Children’s Hospital at Stanford
Palo Alto, CA